MUSC Lupus Erythematosus (M.U.S.C.L.E.) Research Group
The 3rd Annual Lupus Patient Education Event was held on Saturday, September 28, 2013.
And thank you for making the past Lupus Education Events a big success:
If you did not have a chance to attend, email us at email@example.com and we will be sure you are on the mailing list for next year's Event!
For more information on this and other MUSCLE Group events, visit our MUSCLE Events Webpage
"Lupus: Listening and Learning Group"
Next Meeting: Monday, March 10, 2014, 5:45 PM to 7:30 PM (Mount Pleasant Presbyterian Church, Grace Hall Room 123)
"Managing Chronic Illness: Developing your Plan." Directed discussion will be on managing a chronic illness - lupus- toward a healthier mental & physical life. The program is based on concepts put forth in LIVING A HEALTHY LIFE WITH CHRONIC CONDITIONS, by Katie Lorig, RN, DrPH; Halsted Holman, MD; et al. It will include initial steps for individuals to develop plans using this approach. The topics include "owning" self management & managing symptoms. Leaders will be Lupus Foundation of America facilitators Michele Singletary & Alice Burress. Following will be confidential group support of individual needs.
Lupus patients, family members, friends and supporters are all invited.
Meeting format: Generally the presentation and Q&A run approximately 55 minutes. After a break, we have further discussion and support among the lupus patient/caregiver attendees who wish to participate.
Location: Mount Pleasant Presbyterian Church, 302 Hibben Street, Mount Pleasant SC 29464 - Phone (843) 884-4612
Contact: Alice Burress at 843-884-3949 or Michele Singletary (843) 729-0289 for more information.
May Program: May 12, 2014, The program will be a continuation of studying means to a healthier life with chronic illness.
Upcoming Lupus Webchats
CLICK HERE to see what topics are coming up and to access transcripts of previous webchats. Sponsored by the Lupus Foundation of America.
Check Out the New Videos from the LFA on YouTube!
CLICK HERE to search the video library, learn more about lupus and find out ways you can help bring greater attention and resources to lupus.
Download the NEW Winter 2013 MUSCLE Newsletter
"Diagnosing Lupus" by Dr. Jim Oates
"An Overview of Lupus" by Dr. Gary Gilkeson
"Vitamin D Deficiency - Potential Environmental Factor in Lupus" by Dr. Diane Kamen
"Lupus Research Projects and Clinical Trials at MUSC" by Dr. Jim Oates
"Lupus: A Patient's Perspective" by Sheila Murphy
"Lupus and Preventive Health" by Dr. Diane Kamen
"Treatment Options for Lupus" by Dr. Jim Oates
Watch the video "Understanding Lupus" by study participant Sheila Murphy and Dr. Diane Kamen
Check out Dx.Lupus for answers to your Frequently Asked Questions (FAQ) about lupus
For information on the “Lupus: Listening and Learning Group” in Charleston, please contact Alice Burress at 843-884-3949 or check out the calendar of events website. Meetings are the 2nd Monday of every other month, from 5:45 to 7:30 pm in the Fellowship Hall of Mount Pleasant Presbyterian Church. All patients with lupus, family members, friends and supporters are invited!
Important Website Links to “Bookmark”!
28 Below Foundation - dedicated to teenagers & young adults with lupus
Our neighbor's website at the Piedmont Chapter of the LFA
The Lupus Initiative - dedicated to improving disease recognition and management of lupus in patient populations disproportionately affected based on race, ethnicity, and gender. They also feature CME activities for healthcare providers.
The LFA’s Center for Clinical Trials Education - for valuable information about participating in research
MUSC Homepage for Clinical Research Studies at MUSC - for up-to-date listings of all the research studies available through MUSC, searchable by area of interest or by disease name
or call us at 1-866-859-6107 (toll-free) or 843-792-8997 (local to Charleston)
A list of our currently enrolling Lupus Clinical Studies can be found on the MUSC Clinical Research website (CLICK HERE)
The Medical University of South Carolina Lupus Erythematosus research group (also known as M.U.S.C.L.E.) is comprised of faculty and staff with interests in clinical, translational, and basic research related to lupus and community outreach to improve knowledge and awareness of lupus. The M.U.S.C.L.E. faculty principal investigators include clinical and translational scientists Drs. Gary Gilkeson, Diane Kamen, Holly Mitchell, Jim Oates, Tasha Ruth, Melissa Cunningham, Hazel Breland, basic research scientists Tammy Nowling, John Zhang, and human genetics researcher Paula Ramos. Our clinical research effort includes investigator initiated observational and interventional studies and industry sponsored treatment trials for lupus. Our investigator initiated studies are administered through the Clinical and Translational Research Center (CTRC) and focus on biomarkers of lupus and lupus nephritis disease activity, the impact of vitamin D and other environmental factors on autoimmune disease, biomarkers of atherosclerosis and bone health in lupus, oral health and lupus, and the role of stress in the lives of patients with lupus. Our industry sponsored trials are designed to test a variety of new therapies that are intended to be more targeted with fewer adverse effects compared to current therapies used for the treatment of lupus. Our basic and translational research efforts focus on the role of reactive intermediates in the pathogenesis and disease damage involved in lupus, the role of complement in lupus, and genes involved in the regulation of inflammatory processes in lupus. Please visit our individual faculty pages to learn about each member’s research interests. Patients interested in participating in research are invited to contact one of our study coordinators to learn more details about our research trials.
Contact us at:
1-866-859-6107 (toll-free) or 843-792-8997 (local)
or email us at
Back Row (L to R): Holly C. Mitchell, MD (Rheumatologist), Diane L. Kamen, MD (Rheumatologist), Lee Moultrie (Community Research Associate), Gary S. Gilkeson, MD (Rheumatologist), Natasha Ruth, MD (Pediatric Rheumatologist), Jim C. Oates, MD (Rheumatologist), Kevin McElligot (Student), Maggie Harding (Study Coordinator). Front Row (L to R): Stephanie Slan (Study Coordinator), Tammy Nowling, PhD (Research Scientist), Carol Lamborne, PhD (Study Coordinator), Paula Ramos, PhD (Research Scientist), Barbara Roe (Study Coordinator), Hazel Breland, PhD, OTR/L (Research Scientist), Dana Rosson (Study Coordinator), Melissa Cunningham, MD, PhD (Rheumatologist). NOT PICTURED: Abby Powell (Study Coordinator), Kelley Gibson (Study Coordinator).